Think of the wigs I could buy! A new one for every day. In fact, if you gave me the choice between hair and eyebrows/eyelashes, I think I would choose the brows/lashes. I do miss them. I hate the faff of drawing on eyebrows every morning and liner for lashes. I have tried false lashes on a couple of occasions but it is a bit of a faff and of course extensions only work when they have something to extend from. There is semi-permanent but again it’s costly and I am not sure if I’m brave enough? What if the make up artist sneezes whilst tattooing me and I end up with brows like a Harry Potter scar!
But, if I had to write a letter to my 13 year old self I think I would say – honestly your mum is right, you will get through it, you will find a partner, you will be able to do what you want.
Don’t let childhood alopecia define you. I know it’s horrid now but you will realise as you grow older that so many other things are far more important.
I am so glad when I was going through this as a child that there was no such thing as Facebook, Instagram etc as I think kids nowadays have a horrendous time with body image, celebrity status, social media, trolls etc. Don’t spend your teenage years wishing you looked like so-and-so because somebody out there is genuinely hoping they look like you do or have the life you have.
There is nothing worse than being told “there are people out there with worse things like alopecia” but actually it’s true.
So, thank you Simply Wigs for making this slightly easier.
Your company seems to know a lot about wigs and the way u Express yr self makes me feel so at ease I cant wait to try one or two of them that is how comfortable I feel about ordering from u thank u for all yr help xxx
Hi Sally …thank you from the bottom of my heart …it was like reading about me …I am 62 , lost my hair at 8 …lived with hope for years , hormones , 14 , 21 , babies .one day your hair will come!!!….now i am managing being bald …took me since my mum died when I was 50 to talk more, accept more and to love my little bald girl…I microbladed my eyes brows at 60 …and felt sad in the excitement that it had taken me so long …i needed that time …so thank you for being open and honest…as this is me and it’s okay to say it was at times damn hard too …xx and yes eyelashes any time …xx
Hi Sally, very relatible.. I’m 68yr young and total alopecia for 9years which happened very suddenly.. My sister almost 59 has the same since 4years old so this was my worst nightmare!
I did have eyebrows tattooed by a medical tattoo expert and this was well worth it. I had a face again! Hair styles are fabulous nowdays & if feeling like a change its so easy. ?
Eighteen months ago l changed my diet to mainly whole plant based with great results.
Best wishes. Lois NZ
Hi Chrissie I’m exactly the same I won’t let anyone see me either and I’ve had this condition since I was 23 and I’m 58 now. I would really love to my condition to not be a problem to my self esteem but I’m working on it and I am changing slowly. Take care sanda
My heart goes out to you allYou have made me feel a bit of a fraud because although I have very thin hair I do t have hair loss. I wear wigs from choice and thoroughly enjoy it My own hair just doesn’t cut it I feel twice as glamorous wearing them and frankly don’t care if any one knows I’m sure you all look lovely. stop worrying what people think As long as your happy. That’s all that matters
So reassuring that my own experience of alopecia totalis is made so much easier thanks to Simply Wigs.
After buying some dodgy wigs years ago elsewhere , today’s amazing choice ( and great service) make me almost forget my ‘problem ‘ and now after 15 years of being a wig wearer, l certainly don’t worry about it. Thank you SW X
Hi Sally,
It must have been horrendous for you losing your hair at such a young age. I too have alopecia totalis. I lost a lot of my hair in my thirties and had to wear a wig which I was very concious of. Thankfully my hair grew back, though was always quite thin. I reached my sixties and I began to get patches again. I tried all the usual things plus having steroid injections in my scalp but nothing worked. I managed to disguise the patches over time,but it wasn’t going to grow back. After losing it very gradually I finally lost it all plus brows and lashes four years ago. I’m used to my wigs now and don’t feel as concious when I’m out apart from when I’m in a queue , I think people will be able to tell, but really it doesn’t matter if they do. Lots of people wear wigs these days. I still don’t let anybody see me without. I admire those who do but I just haven’t got the courage yet.
Take care
Chrissie
Hi Sally hope ur well. Reading your story was like my life the exact story all that pain of school and trying to fit in with people is all in the past TG . But like u I met my husband and was lucky to meet the right person that loves me no matter what I have a beautiful daughter with long blond hair to die for I life is great thanks for telling your story good luck to you sally . Love Sandie
Sally my heart is with you one hundred percent. Nearly everything you have said I understand completely. I am 58 and lost my hair with alapecia totaliser at 23 years old with 2 little children it was so hard sometimes wasn’t it back in the eighties but it had made us the people we are today. God bless Sandra x
I absolutely loved reading this Sally! Your family sound amazing and you will have given hope to so many other people out there. ?