
‘WRITE FOR US’ FEATURE
Losing your hair to alopecia
Three days before my 19th birthday, I woke up to find all the waist-length hair from the left side of my head, lying on the pillow. I stood looking at it, patting my head to make sure it was my hair while trying to convince myself that I was the victim of a drunken student prank. I didn’t then understand
‘I was starting a relationship with alopecia that 40+ years later is still going strong’.
Over the next two days, the rest of my hair wafted onto lecture notes, cafeteria food, pub floors, and bathroom drain. In desperation I took myself off to the student doctor, who opined that I had stress-related telogen effluvium caused by two recent devastating bereavements. He couldn’t tell me if it would come back and gave me a prescription for a wig. These were supplied by an elderly male technician in the basement of the local hospital, in a department called ‘medical appliances’. Surrounded by bedpans, walking aids and commodes, he took my script and asked me if I would like ‘brown, black, yellow or red’ with a sub choice of curly or straight. With the offending (brown, straight) item in a white paper bag, I was dispatched hairless and distraught into that cold February night.
When I dared finally to look in the bag at the coarse rat-like object, I took a razor and removed the few remaining strands, whacked on some black lipstick and a velvet Annie Hall style hat, and tried to prove that it was all just fine.
‘I swore there and then that I would never wear a wig’
My hair did eventually grow back, thinner, weaker, coarser, with a hugely depleted hairline, but for the next 30 years, it was a constant cycle of remission and relapse. I had a pretty decent head of hair for my wedding photos, but 6 months later it was nearly all gone again. I tried every potion and lotion sold by hairdressers who always for a moment convinced me that THIS was the magic elixir. I took supplements, my kind doctor did every blood test I asked for. I saw trichologists and dermatologists. I massaged smelly ointments bought online into my scalp and faithfully painted root thickeners that did nothing for my hair but gave me filthy nails, collars and pillowcases. I brazened out the bald and had a fine line in hats.
‘No snake oil was too bizarre for me to try’
Ten years ago, I got chatting to someone online, who casually mentioned that she was ordering herself a new wig. She assured me that ‘wigs had changed’. Tentatively, I started to explore, and at 55 my scalp had another massive shred, this time it appears probably permanently.
‘I now have a fine selection of wigs‘
None like rats, I’m glad to say. My current favourites are an Ellen Wille French in Rooted Silver, a Jon Renau Kristen in Martini, and an Amore Erika in Marble Brown. I’m completely ‘out’ about my baldness, so I’m free to have a different look every day if I want. My husband frequently loses me in supermarkets, as he can’t remember what I look like on any given day. I do still rock the bald some days, although my jawline doesn’t cope as well with such nakedness as it used to, and I do tend to wear a fair bit of makeup and change my contacts for glasses on bald days.
Online ordering has become easy and safe, with stores like Simply Wigs offering a fast personal service and easy returns (although I do try to avoid this).
I’m happier with my head now than I have ever been. I can always look polished, I never have to bother with expensive styling, colouring, or hair products. A wig can be bought for the same price as a cut and colour and lasts a lot longer.
‘If I had one wish . . .’
. . . it would be to go back to that 19-year-old, standing barefoot in her PJs on a cold bedroom floor in University halls, trying to work out what had happened to her hair overnight, and tell her it was all going to work out just fine. There is a great life still out there after hair loss.
love from,
Joyce
x x x
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‘Whispers From A Wig Wearer’ Community?
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Joyce, you are one amazing lady and your hair looks brilliant! Reading stories like yours helps to reinforce how I feel about my wig. It’s better than my own hair ever was and moves, floats, looks more natural than my own structured, thin, lacquered hair ever could. Simply Wigs are simply our saviour.
Hi, I’m the author of the article, thank you all for your kind comments. At the end of the day, alopecia is just a set of cards you’ve been dealt by life, and I’m just glad there are many more options nowadays to help you deal with that. I can’t really imagine a life WITH hair anymore, if I’m honest. But I do appreciate that I can go to the gym (bald), then two minutes after getting dressed look completely polished.
I remember what wigs were like then. I was a hairdresser and we washed the wigs in petrol ,yes petrol. I wore pieces because my hair was so fine. I now wear wigs. Your story is of bravery and courage, to see your hair fall out must have been a nightmare for you. Your wig is beautiful as are you. Simply wigs are amazing. You are beautiful inside and out.
Hi Joyce, I found your account of hair loss poignant, moving and funny in equal measure. The fact that were so young when it started, before the internet and probably even support groups, and somehow managed to navigate through such an overwhelming condition is so commendable. Much love to you now and, In particularly, to that scared yet brave 19 year old you once were.x
Brilliant Joyce. Although I didn’t lose my hair as early as you I didn’t know where to turn. Eventually through a series of looking for solutions that would suit me I discovered simply wigs and have never turned back.
Oh Joyce, I felt so sad reading your wonderful article! And yet also so uplifted! That experience at 19 must have been horrific and you have been so brave throughout your life to deal with your alopecia so well. I didn’t start to lose my hair until in my 50s but I can’t imagine how hard it was for you.
You look absolutely wonderful now and your inspirational story will help and support many of us who read it. Thank you xx
Oh Joyce, what a great read. You have a great talent for writing. And you look fab! Thanks for sharing your story. It will be very reassuring for younger wig wearers.